The Farrell Bag is attached to her feed. Although she doesn't seem to be as fussy with gas, I've tried to increase her feed to 88 ml/hr - per the dietitians recommendation (get up to 90ml) and fifteen minutes after her noon meal... we have a milk volcano.
How is she supposed to gain weight when we can't even keep the food in her stomach?
Tomorrow, we're off for our fourth appointment with the wound care specialists. Another $20. copay well spent. In the video, you can see some of the red, raw, irritated skin. I shot video of a non-volcanic g-tube this past weekend, but after this video - what does it matter. Clearly, ours does not work right and apparently, there isn't anything we can do about it. So DONE with this P.O.S.
Frustration is an understatement.
Well doesn't that just suck?! But look at what a champ the bean is! I'm sure she's uncomfortable, but she's just chillin'.ReplyDelete
clearly bothering you more than her but nonetheless I would want to punch someone if they can't fix it.( I mean that in a nice way) NOT!ReplyDelete
I can see why it would be red, raw and irritated if it's wet all the time! It seems as though there should be someone out there working to invent a better version of the G-tube! Maybe in your spare time (bwahahahahahahahahahahahaahhahhaaaaaa) you can work on that? Andi is adorable, even as a milk volcano! :)ReplyDelete