Yesterday, Andi had her follow-up appointment with the surgeon & surgery nurse.
First of all, she weighed in at 16.23 lbs!
They are aware that she's not yet tolerating full feeds and puking almost every feed. They want me to go back to the 36 calorie formula and try to get her tolerated volume up. We're to come back in two weeks, and reweigh. If her weight isn't dazzling, they want to put in a PICC line (an IV into her arm, not as deep as a central line), and do TPN in conjunction with the feeds, to insure she's getting enough nutrition and not getting dehydrated.
So, I'm slowing down her feeds and trying to put more in, slower. This means she's tethered longer, but, we have to do what we have to do. We're also to supplement her feed with additional boluses of Pedialyte. It's either that or tether her and torture her to get a PICC line in. Plus, the TPN poop is something I really don't want to smell again. Ewh!
After our appointment, we had to stop off at the grocery store to pick up a few things. It was time to have her try to sit in the shopping cart. She did really, really well.
I know, she needs a haircut, bad! I held onto her jumper most of the time, and although she got a little woobly, she did amazing! Sadly, I was so distracted by our big outing, that I forgot to pick up some essentials like diapers. Oops. Therefore, we'll have to sneak out again today! We're going to see the Kaiser ENT as a follow-up to having her tubes put in her ears. So, we'll be out and about anyway! Practice makes perfect!