4th Birthday Photo Session

4th Birthday Photo Session

Friday, October 12, 2012

Turning Points

I hate to jinx it, but I think Andi has made a couple significant turning points.  First of all, Andi has been wearing her hearing aid all day long.  She has even been to kid's club with it in, twice. If it comes out, she whines and gets mad - demanding it gets put back in. She's eager to say new words every day!  She's like a little sponge just trying to gain more knowledge.

Our second turning point is oral feeds.  We left her feeding specialist earlier this week with the goal of getting Andi to take two feeds by mouth, rather than through the g-tube.  The past two days she's eaten just about everything offered her.  My only fear is that I don't know how many calories she is getting with my doctored mashed sweet potato or mashed potatoes, with all the additions I throw in to make it taste good.  Last night, she was having some cream of potato soup late in the evening.  She was extremely tired, and instead of swallowing it, she accidentally inhaled it.  It so went "down the wrong pipe"...she coughed and coughed and coughed.  I felt bad for her, but find that when she gets that tired, she doesn't fare as well.  She tends to fall over and smack her head when she's super tired.

It is my goal to get up in the middle of the night and give Andi an additional g-tube feed.  It's my "goal"... so far, I haven't been able to wake up.  I'll keep trying though.  She weighed in at the feeding specialists office at 21 lbs.  Slowly, but surely, we're gaining weight.

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