Here are a few photos taken from my phone. The first one is from yesterday and the other two are from today after getting her hair washed and a fresh outfit on. We may be stuck here, but, that doesn't mean that we can't be a little styled!
|Happy Bean and her central line (lame g-tube as well).|
|Russian Dancing in Bed|
Bean shocked me around noon and settled in for a four hour nap! Horray! It was a nice treat. Luckily, we have the central line in so we won't have to endure four hours of Bean torture tonight to get pre-op lab work done. No sir'ree... I think they are all aware not to mess with me or Andi.
Being sick, I haven't had the energy to sit and write down all the many suggestions to their protocol failures or annoyances on the receiving end of service. I know the whole organize the blood draw in order of importance. The other thing that really irritates me is having to pick up the phone and be buzzed in the doors to the wing. Living here, I feel like they should give me a parental card that works while you're here so you can come and go as you please. It's especially annoying when you come back from grabbing some food to eat in the room, and you've got to juggle into one hand your sandwich and soup, tucking your water under an armpit. It'd be easier if they just hook me up with some sort of badge with very limited access. That's fine. They shouldn't have to stop what their doing to buzz me in, and I shouldn't be left to feel like I'm putting them out trying to come back in. Being here is hard enough, don't make me feel even worse about it.
So, tomorrow is another big day. Hopefully, it's our last trip to the OR... that would be a wonderful treat!