Today marks the one year anniversary of Andi's heart surgery, a complete AV Canal. Filling two holes and making two valves out of one. It was a pretty complex surgery, and we are so extremely grateful to Dr. Stephen Langley and his team of angels! Not to mention all the PICU amazeballs and all the other Doc's & Nurse's...especially the ones that enjoyed Andi so much, they came to check up on her recovery. That is the lure of Andi Bean... What an incredible year it has been!
Looking at Andi's chest, the marks of open heart surgery are fading. You can barely see where the central IV line went in, where the pacing wires came out, where the drainage tubes were, and even the chest plate scar isn't super obvious.
Andi also weighed in today. She weighed 14 lbs, 15 oz's, so just shy of 15 lbs. A year ago she was 8 lbs, so, it's pretty evident that the leaking g-tube is a major issue. I have an email in to her dietican to see if we can increase the calories in her formula and reduce the volume. As the more I seem to pump in, the more it seems to leak. Andi was measured yesterday by our new community health nurse. She measured in at 27.5" which is almost a 2" difference since 7/5. Problem is the inconsistancies of the length measurements. Regardless, she's definitely gotten longer.
So, today is a huge milestone. One year since her 'rebirth' with a repaired heart. We're forever indebted to the team that helped her through this! You are our heroes and we're eternally thankful. Now, if we could get the dang g-tube squared away so she received full nutrition, imagine what this kid could do!!!