The drainage tubes are out and the Nitric Oxide is gone. The only things left are the pacing wires, the IV's, and the intubator. They have the pacing machine set at 100 bpm, and it's really just being used as a back-up. When we were there today, she was doing everything on her own. She awoke quite a few times and the last time she was awake, she was pretty upset. It seemed to me that she was mad about still being intubated. We were told that if all goes well, that'd be removed within the 24 to 48 hours. She's anxious to get it out. It was heartbreaking to see her upset, and know there wasn't much we could do for her.
Today, she held my finger. It was pretty amazing to have that connection again. Hopefully soon we can pick her up and hold her again. It's wild to see her growing and yet saddening to see how much we've missed as a family in her 14 weeks. It's all that much more we'll have to do to celebrate when finally get out of the hospital, and are all together full-time.