Readmitted

We've been readmitted.  The penthouse floor, V.I.P. status.  Bittersweet.  So nice to see many people we know and missed, but sad to have to be here again.  The Bean weighed-in less today, 12 lbs., 10 ounces.  So, she lost a few oz's in the past two weeks.  We been seen by a dozen people already. I've given the monologue several times, some more colorful than others, answered a gazillion questions, and reacquainted with the KP Attending Pediatrician whom we spent a week with last September.  She's been poked for blood, catheterized for a clean urine sample (better than bagging, less contamination possible), x-rayed, her g-tube pouched (to collect the leakage for measurement), checked by our favorite cardiologist, nutrition, visited by many Dr's, students, and our nurse friends.  All are amazed at how good she looks, how active she is, how advanced her cognitive skills have become. Other than her leaky g-tube and her need to put on weight... we wouldn't be here...so... they're on the case. 

Andi and I are in our pj's and winding down a long day.  Her with froggie, and me with some Adele, because they haven't yet implemented the adult beverage cart I suggested long ago.  I swear they could fund a new building if they did offer it up to us overwhelmed and frazzled parents. Can you even imagine a happy hour mixer in the family lounge from 5-7?!  THAT ... would be AWESOME!  I'll bring the disco ball, some Earth, Wind & Fire, and let's paint this place a new shade for a few hours!!?! I know there are parents here going through ten levels of hell.  We've been there, and it would be nice to be there to support others going through tough times.  I've downloaded and will bring Oprah's Moscow Mule recipe!  Now, there's a conversation starter!
Being away from home is going to be weird, so I emailed myself a most-precious picture I shot on my phone the other day:

If you look closely, you will see that Andi is actually holding Maddux's paw.  She loves him, and although he's really sweet with her - I'm sure he will enjoy a few quiet days without her wrecking his nerves.  At the time this photo was shot, she was in the midst of getting an olive oil treatment for her dry / cradle cap. The weather here sucks, but, it's not THAT cold.

Tomorrow will be interesting.  More tests. More visits. More question after question.  Hopefully all will help get us some answers, and a new game plan!