4th Birthday Photo Session

4th Birthday Photo Session

Monday, January 30, 2012

Responsibilities

Sometimes, the responsibilities of having a kid with CHARGE Syndrome, is a bit much.  Although, medically, Andi is doing great, I'm currently playing a wicked game of hide-and-seek right now with her hearing aid.  The hearing aid is winning.  Now, although I have about a year's worth of papers to file, and I tend to leave "piles" around these past few years, I rarely, rarely, lose anything.  So, to have this hearing aid, her 2nd, go missing in our home, is rather weird.  Usually, she only wears it in the living room.  The last time she wore it, it was Saturday afternoon.  I brought her to the bathroom for her bath, and took her back to remove her hearing aid. Then carried her back to her bath.  Now, I can't locate the device anywhere.  I'm gauged my hand trying to shove it down the back of each couch cushion, in search of the device.  I've moved and cleared all the toys out from under then couches, TV stand, recliner.  I have picked up everything, sorted through everything, and still, the game continues.  Yet, I'm not amused.  There are four places I have put the hearing aid when not in use.  On the TV, on the ledge of the kitchen wall, on the table with the diapers, and on a TV tray that we leave on the couch.  Daddy Bean cleaned that up that tray prior to his parents coming to babysit.  Maybe he'll have a clue or two to share.  Daddy Bean is in the ATL this week for a training class. Hotlanta is enjoying mid-60's this week.  I seethe with jealousy.  But, in his absense, I vow to get my piles filed, organized, and maybe I'll even win the battle of hide-&-seek with this damn hearing aid.  Otherwise, I will have to tote myself into our next audiology appointment with my tail between my legs, and admit defeat.  But, if there's anything I've learned from my lil' CHARGER, it's to never give up. So, although responsibilities sometimes suck, we will march onward, upward and fight, fight, fight.  ..."Lil' battery sucking, earwax removing, piece of PLASTIC!!!!"

2 comments:

  1. Our audiologist told us to keep it away from our dogs because she has heard about multiple families losing their hearing aid to their dog. I guess dogs like them!!! haha

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  2. oh i was smiling coz ive read this sortas story on many charge blogs IT HAS TO BE A CHARGE THING me ive never lost my hearing aid but my carer lost it once i thought was where usualy is when i go to sleep rite next to me well it wasnt no where to be found it was in the kitchen i was imagining going to cpp tho complatly deaf and having to buy another baha but we found it yay ive heard many stories its crazy xxx

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